KIDS Framework to be used in first ever Pediatric Cell Atlas

Collaborators at the Children’s Hospital of Philadelphia will launch the first ever Pediatric Cell Atlas, which will model its data sharing policies on the KIDS Framework developed in this thesis report the authors of April 2nd article published in Cell Press. They note that professionals “must consider the ethics of obtaining samples from healthy children who are not able to provide informed consent themselves and releasing pediatric tissue data under informed consent while simultaneously safeguarding patient identity.” Despite this however, “there have been relatively few formal opinions on pediatric open- data sharing.” The work of the Paediatric Task Team of the Global Alliance for Genomics and Health was cited as one of the only initiatives to fill this policy gap, and the KIDS Framework will serve to ground the ethical-legal policy development for data sharing as part of the Cell Atlas project.

Vasiliki Rahimzadeh